tag:blogger.com,1999:blog-8500871640570095910.post5953288519045789642..comments2009-07-13T11:14:23.770-07:00Comments on Little Es Big Adventure: Great Weekend then back to realityThe OBrien Familyhttp://www.blogger.com/profile/12142884496929265322noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8500871640570095910.post-23021079396187166022009-06-02T15:42:54.651-07:002009-06-02T15:42:54.651-07:00Molly, I'm glad you all had a good weekend! It mu...Molly, I'm glad you all had a good weekend! It must be great to be able to talk to all the families there that are in similar stituations as you guys. Hugs, prayers, and love to you, Ethan and the whole family!Francyhttps://www.blogger.com/profile/16786507556145403912noreply@blogger.comtag:blogger.com,1999:blog-8500871640570095910.post-77612047390654859212009-06-02T15:20:02.370-07:002009-06-02T15:20:02.370-07:00Heather!
Thank you for your comment. Mark and ...Heather! <br /><br />Thank you for your comment. Mark and I had been fighting the feeding tube all Ethan's life. You would not believe the lengths we went to avoid a tube...think 24 hours a day of feeding when he was a baby...what were we thinking?!?! If we had been followed by GI from the start I'm sure he would have had a G tube for years now. Live and learn, I guess.<br /><br />At least half the kids in the program have feeding tubes and in speaking with their parents, we've (at least I've) seen that it really can make life easier. We'll be able to actually get his medication into him! Wow! And we'll be able to actually get nutrition into him. Wow! His 4 food groups right now are dairy, sugar, salt and flour! A square meal! Wow! Mark and I suspect that we'll have an improvement in behavior once he is properly nourished...so, we're good with the decision.<br /><br />I copied the link to a few girls in the group. I think I'm a bit email address challenged these days so feel free to send it out. Thanks for thinking of us and I cannot wait to get back for the Sunday night gathering!<br /><br />See you soon!<br />MollyThe OBrien Familyhttps://www.blogger.com/profile/12142884496929265322noreply@blogger.comtag:blogger.com,1999:blog-8500871640570095910.post-89345244598883925602009-06-02T12:44:28.511-07:002009-06-02T12:44:28.511-07:00Molly, I just logged on again after the weekend an...Molly, I just logged on again after the weekend and wanted to let you know that I am praying for things to continue in a positive way for Ethan. I read about the g tube, and while I realize that this is the last thing you wanted to do, I'm sure, I want you to know that we've been through it and are here. The g tube makes certain things easy if you end up that route...at first, we fought it, then accepted it but made it our mission to see it out, and then finally realized that it wasn't so bad after all. I'm here if you have any questions about it, and trust me, we've learned a lot of tricks along the way.<br />Will has many feeding issues too...including esophageal dysmotility (a new one since our group) and had trouble protecting his airway as a baby.<br /><br />All of this rambling to say, I wish I could give you a hug. I'm here if you ever need a chat or have questions. Can I tell the group about E's blog? I don't think they all know about it...I found it on FB.Heatherhttps://www.blogger.com/profile/02202035183109298503noreply@blogger.com