So, how many days, hours, minutes, and seconds?? You can put a counter on your blog. I don't know how but I've seen it on other peoples blogs.
Hey Fran, I knew I would hear from you! LOL I wrote a whole long piece about going to visit the cardiologist and it got lost when I posted it. I was bummed, so I didn't fix the blog! Sorry about that! Ethan has 6 more program days. He will be discharged on July 13th. The cardiologist said the feeding issues could be caused by the rogue artery and referred Ethan for a new echocardiogram under sedation. We're waiting to hear back, but it should be this week. I'll update more when we get back. We are in Philly lounging by the pool again this weekend. The weather is BEAUTIFUL!!!
Also, Ethan continues to pack and spit. Spinach, chicken nugget and now Pork & Beans. This is soooooo not fun! We're going to have to give him all his meals outside so we can just hose everything off! LOL. Have a great 4th of July weekend!
OH MOLLY, I HEAR YA. DYLAN HAS HAD 6 BAD MEALS, BUT TODAY HE TURNED AN ATE A COMPLETE BREAKFAST AND MILK BEFORE THE TIMER WENT OFF....IT'S CRAZY YOU NEVER KNOW WHATS GOING TO HAPPEN..I AGREE WITH THE HOSE, THEY MAKE SUCH A HUGE MESS. LOL SEE YOU MONDAY. GIVE ETHAN A BIG FAT KISS FOR ME.LOVE SHANNON
So, what happens when he comes home and packs and spits? Is he getting enough calories, I guess? I swear Will can never gain weight, so I'm thinking of all of the lost calories! LOLHeather
Hi Heather! I noticed your comment when we were reviewing today's post! You'll have to come over when we get home so I can give you an overview, it's really interesting! I asked about his spitting today, they're going to change the protocol to try to eliminate the spitting...we better move fast cause there are only 5 days left! They won't send us home when he is spitting so much. It seems like Ethan comes up with a new trick every weekend when we feed him outside of the program. He's such a smart little booger. It's a good thing he's cute!Hugs to you & your kids!Molly