The novelty of being here has definetly worn off. We just finished another pack and spit meal. Lovely. We have to feed him 5 times per day and each feeding is taking between 20 - 50 minutes, not including the setup and cleanup.
A friend of ours, who very nicely finished painting the trim on our house, sent a picture to us of the finished product. I am now officially homesick! Our house looks great Tommy! Thank you! Thank you too, Peter, for cutting our grass! You guys rock!
We had our swallow study today. Ethan was very cooperative. We still need the final report from the Speech Therapist, but I don't think they found any problems. Good thing!
We have our much anticipated cardio appointment with the highly rated Duke Cameron, MD on Thursday morning and then it's just a few more foods til we're home. Our official discharge date is July 13th. We can't wait! It will be nice to have our whole family together again and back home.
Please keep one of our families in your prayers. Normally, I try not to include names, but this kid has been in the news alot so I'm sure it's ok. KKI has a lot of different intensive programs for kids with disabilities. We met a family whose 5 year old daughter, Margaret, was in a car accident on January 2nd. She broke her neck, among other bones, and has had quite an uphill battle. She's been in various hospitals since the accident and FINALLY got to go home today. Her family is going to have a lot of hard, hard work ahead of them, but they are fighters. Please send your prayers their way.
If you want more information about this beautiful girl and her family, her blog is www.caringbridge.org/visit/margaretromph
Have a great night!
Mark, Molly & Ethan